European
Human Rights Court has given its verdict on a case of human rights that will
compel a couple to allow their sick baby to die.
The
parents of the baby Chris Gard and Connie Yates have been in a long legal
battle to save their baby who is suffering from a serious genetic illness.
The
baby is currently on life support while treatment options were being
considered.
At
8 weeks old, Charlie was diagnosed with mitochondrial DNA depletion syndrome
and is considered to be only one of 16 babies worldwide with this disease.
His
condition is progressive and currently incurable and eventually fatal.
Meanwhile,
doctors are developing treatments for the various mitochondrial conditions,
including the nucleoside treatment Charlie’s parents have been fighting for.
Charlie’s parents prayed
the court to determine if they, as parents, have the right to continue to
provide medical treatments for their son or if he should be allowed to die
The
parents of the 10-months old baby want the court to let them use a potentially
life-saving drug from the U.S. on their son.
They
believed that the drug (which is still experimental), would help their son’s
genetic condition rather than allow him to die as doctors have recommended.
However,
a June 27 ruling of the court held that the application by the parents was
‘inadmissible’.
The
court said that the baby was being exposed to continued pain, suffering and
distress in pursuit of treatments that were unsure.
It
added that any additional treatment would continue to cause harm to the baby
stressing that its ruling is “Final”.
“The
EHRC also removed the interim measure to keep Charlie’s life support in place.
A
spokesman for Great Ormond Street Hospital, where Charlie has been treated
since October, has told the parents that there is “no rush” to remove Charlie’s
life support.
The
spokesman said that any future treatment will involve careful planning and
discussion.”
The
hospital has said that though there is a deadline in place for Charlie, they
wouldn’t have to follow it exactly. The discussion and planning will take some
days to work out.
Meanwhile,
Charlie’s parents have so far raised over £1.3 million through a GoFundMe
account for his treatment.
With the ruling of the
court, the parents are unsure what they want to do with the money.
They
plan to donate some to the U.S. hospital willing to treat Charlie, while the
rest will be put into a charity for other children with similar mitochondrial
conditions “so that nobody else ever has to go through what we have.”
She
said, “We’d like to save other babies and children because these medications
have been proven to work and we honestly have so much belief in them.”

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